A big howdy to everyone out there! I hope this finds everyone having a pain free day. For this post, I just want to promote the Lyme Disease Challenge. This is a social media movement striving to bring more awareness and understanding to Lyme Disease. Check out www.lymediseasechallenge.org for more details and printables!
Even if you cannot donate to the cause, even just doing the Challenge would be awesome. All donations will go to benefit the International Lyme and Associated Diseases (ILADS). Already, almost $15,000 has been raised. This is a great opportunity for all of us to get involved and spread awareness about this disease. The ladies who organized this have worked long and hard, and now it is time for us to do our part! We have a voice, we have the tools, and now we have the movement! I hope to see your posts taking a Bite out of Lyme soon. #lymediseasechallenge
So, at my doctor visit a few weeks ago, we decided to retest for co-infections. I was tested in March 2014, along with the test for Lyme disease. At that point no other infections were showing. Now, two years later, and I am still feeling like every day is a real challenge as far as symptoms go. Dr Horowitz, in his book, Why Can’t I Get Better? , examines the possibilities of other infections going on along with the Lyme. A multisystemic illness as well as approach to treatment.
We decided to check again for the big 3, Bartonella, Babessia, and Ehrlichia. We also decided that we check for Candida, Mycoplasma, and the MTHFR mutation. I brought these up based on Dr. Horowitz’s book. Now, in September, my doctor wanted to do a through genetic DNA test. This test would give us info on several possible MTHFR mutations, it would reveal how well I process certain medications, and it would help us know what medications, both antibiotics and pain meds, are best for me. But the insurance denied such shenanigans and with my looming deductible of like $1,200 to meet first, well I had to pass on that test, unfortunately. At least for now.
Anyway, back to this most recent visit and blood work. Results are in: none of the Big 3 were positive. No Candida issues. Cool! But, I do have Mycoplasma, reactivated EBV, and an MTHFR mutation that hinders my processing of B vitamins. Ok, ok.
I won’t lie. This information freaks me out a bit. Actually, a lot. I mean I know many people are dealing with co-infections. It’s just damn. Lyme bacteria is complex and intelligent enough on its own. Now, add Mycoplasma pneumoniae to the mix. This is the bacteria that causes walking pneumonia. And then the EBV is active, the virus that causes mononucleosis. I’m basically hosting a crazy party in my body, and I didn’t even get an invite. Excuse Me?!?
Now what? Honestly, I’m not sure yet. My doctor has this extremely annoying system where you go for your visit, then do your blood work, then wait 6-8 weeks for a follow-up appointment wherein we discuss the lab work from 2 months ago. Makes really no sense to me but then again, I’m no doctor. What I am trying to say is, she didn’t change my meds for now and I won’t see her until April. Then, I guess we talk about the co-infections.
However, a dear friend sent me Healing Lyme Disease and Coinfections by Stephen Buhner. He goes into great depth about all of the mycoplasmas of which there are several, and how to treat verbally. Some of what he goes through is the details about how this bacteria works on cells, etc. This part is very detailed and I am pretty lost. From what I have read, this bacteria is also extremely deft and intelligent as well. He states that the coinfections work synergistically. Again, WTF?!?
I’m trying to take this all in stride, research as much as possible, and understand what all of this means. Please wish me luck as I will most definitely need it.
Anyone else dealing with a Mycoplasma infection? And if so, how is it going and what is the protocol for treatment?