Two Steps Back…

Hey all you people! I haven’t been in touch lately. School started back, and it has been a whirlwind ever since. Mostly, I come home and lay in bed to rest. I rest on the weekends so I can work through the week. Or at least try to. I’ve been off of antibiotics for almost 7 weeks now. At first, there  wasn’t a considerably difference. After a few weeks, the headaches became less and the nausea was a lot less. Otherwise, things were not better or worse. But then, the first week in September, I caught a cold. My husband was in bed for three days over Labor Day weekend; I stayed as far away from him as possible! But so many people were sick at school, it was impossible to stay away from the germs.

So it got me. I held on, and I really thought I was winning the battle. But since then, things have gone south. My energy level is nil. I have a recurring sore throat on the right side and I have issues going on with my sinus. I’ll spare you the gory details but suffice to say, my sinuses are full. I can breathe through my nose most of the time, but there is stuff way up in there that comes out in the morning and evening through coughing. The body aches and the back pain are back. No appetite really. I’m guessing that the EBV is active again and maybe the Mycoplasma pneumonia load is high again. Depressing? A, just a little.

Walking forward.
Walking forward.

Heading to my LLMD tomorrow. While I look forward to going, I know I will walk away disappointed. Labwork takes a week, and then it is a VM recording from the doctor about the lab numbers and what is next for treatment. Nothing seems to change much. No matter what, I am guessing my doctor will end up putting me back on some antibiotics, and we move sideways? It hasn’t been a move forward in ahile by my account. While the summer was nice because I could rest as needed, I feel as though I haven’t made much progress in terms of my health since I had the Picc line last summer, 2014.

So, now what? I drag myself through every day, hoping the next day will be better. I’m finding less and less to enjoy as I am too fatigued. I have an appointment with a different doctor in November; I’m hoping to try and find some other ways to treat this along with antibiotics. I do have tons of supplements and I am trying to take some antivirals, but it got to where I was taking like 30-40 pills a day and that got old real quick. My diet needs to change. I know this. And I need to make it happen. I just get so tired!

We’ll see how tomorrow goes. At least I can tell my doctor what is going on and that in itself can be a relief. I promise to update soon.

Peace – B

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9 thoughts on “Two Steps Back…

  1. amyhawk0321 September 27, 2015 / 2:22 pm

    You have to believe that you will get better buddy. At least with one step sideways, you are still moving. November is just around the corner and this new doc will have a whole new perspective for you. 👭

    Liked by 2 people

  2. Lyme&Co September 27, 2015 / 5:07 pm

    Hang in there. I’ve felt exactly where you are many times.

    Liked by 2 people

  3. The Person Next to You September 30, 2015 / 1:25 am

    I started using essential oils in the spring this year, and they have really made a huge difference. If you ever want to try something different (that doesn’t tear up your system), contact me. Yes, I am a distributor – but I work closely with a Lyme doc that developed this protocol, and we also have a private Facebook group for people on our team that are using the oils.

    Sending you healing thoughts…

    Like

    • readbetweenthelyme October 2, 2015 / 10:16 pm

      Thank you! I’m seeing a new doctor in November and I have heard she treats more holistically so I may be in the market. I use lavendar a lot for headache relief and sleeping. ☺

      Liked by 1 person

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