Just Because You Said It….

Doesn’t make it so! Over the past few months, this is what I wanted to say several times to a doctor I decided to “try” out.

After testing CDC positive for Lyme disease again in February, even with 3 years of treatment under my belt, I won’t lie. I was feeling really lost as far as how to progress with a treatment plan. My LLMD put me on a Z pack for 5 days and that was it. I am sure he did not want to throw me back onto antibiotics if at all possible. But still. I was really not feeling confident in what path we would take at this point in the game.

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A friend of mine had recently visited a local rheumatologist. I reviewed the doctor’s website, and it actually advertises that she treats for Lyme disease. Oh, the awesome feeling I had! Most doctors know nothing about Lyme and about nil advertise Lyme on their website. Yes, to say the least, I got my hopes up. The further to fall, some would say.

And lo and behold, she knew nothing about Lyme. She prescribed me Lyrica for my fibromylgia pain on my first visit to her, without any labwork, without checking other diagnostic criteria I expected. She ordered about 15 vials of blood taken to test for other auto-immune diseases. When I told her I had been treating Lyme, she actually asked me if I had been bitten by a tick. Seriously!?! In almost the same breath, she told me that there should have been no reason for my being put on antibiotics for so long. I felt the pit in my stomach growing. I told her about  the severe fatigue I was experiencing. I brought her the bloodwork showing my CDC positive results.

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Honestly, I don’t think she even looked at the lab report. I did a follow-up visit but it was more of the same. Although I was glad to know that I did not test positive for any other issues, she did not help me at all. I am not taking the Lyrica; I have decided, thanks to my 2 other doctors who do know about Lyme disease, to pursue a more natural approach to treatment.

I guess I knew that it was too good to be true that this doctor I tried out really would know Lyme. While this was disappointment, it wasn’t necessarily unexpected. However, what was somewhat unsettling is how quickly she was willing to put me on medication. Not antibiotics mind you, but the Lyrica. For  my severe fatigue, she told me to drink more caffeine. I suggested this would not be good for my adrenals and she stated that my adrenals are probably shot anyway so it wouldn’t make a difference. I was shocked. This was the last straw.

Lesson learned? This whole incident did emphasize that my 2 LLMDs know what they are doing, at least for me personally.

I hope you had a great weekend. I’m back at it; fighting the good fight. Peace – B

An Award! Oh My!

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I would like to sincerely thank Lexi over at Fluff and Co for nominating me for the Blogger Recognition Award. This recognition has made my month of March, well, even my year, so far! I’m just so excited! Thank you, Lexi! Please check out Lexi’s blog where she writes about food, beauty, fun, you name it!

Simple rules to follow:

  • Select 15 other blogs you want to give the award to. You cannot nominate yourself or the person who has nominated you.
  • Give a brief story of how your blog got started.
  • Give a piece or two of advice to new bloggers.
  • Thank whoever nominated you, and provide a link to their blog.
  • Make sure to also attach the award itself! Comment on each blog and let them know you’ve nominated them. Provide a link to the award post you created.

How Read Between the Lyme got started?

For the past 3 years, I have been learning how to live with a chronic illness. Chronic Lyme disease is misunderstood and there is little information (and a lot of misinformation) out there. I decided to share my experience via blogging mostly for selfish reasons: to connect with others, to put a voice to some of the struggles I am dealing with, and to help educate others about this disease. It has proven to be a wonderful and inspiring adventure!

Advice to new bloggers:

Keep at it. Enjoy. One step at a time.  🙂

 

My fabulous nominees are:

No Passing Fancy

itsgoodtobecrazysometimes

Looking for the Light Blog

Two Rooms Plus Utilities

Dr. Gulara Vincent

The Chronicles of Chronic Illness

Just Plain Ol’ Vic

Jenny Lives Blog

The After Prison Show

Indisposed and Undiagnosed

EllenBest24

Hughcurtler

Element

Flowing Through the Fight

Daisy in the Willows

I hope you can find a few minutes to check out these awesome people and their blogs. Happy  Easter, peeps. xxoo-B

 

 

WTH?

Sorry for the radio silence. I’ve had about 3 weeks of severe fatigue. When I haven’t been working (or haven’t been able to work), I’ve been mostly in bed or at doctor appointments. Yesterday and today were the best days I’ve experienced in more than a month. So this is short and sweet. I promise to do a real post very soon. Thanks for sticking around. I’m hoping all is well in your world.

Be good.  – B

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