Ever-Changing Symptoms

I was really hoping these last few weeks of school would go very smoothly. I’d made it this far, limping metaphorically, but since spring break, I wasn’t doing too horribly. My protocol since March this year has been herbals only, and so the hope is that my body in conjunction with the herbals can combat the Lyme and send it packing. Yes. I completely understand that after taking a multitude of antibiotics for over 30 months including IV abx is hard on the system. Yes. I understand that my gut flora is messed up. Yes. I know it will take awhile to get my system back on track. Yes, yes, yes. Got it.

Knowing now what I know about Lyme disease and the various ways to treat it, would I go back and do the same thing? Most likely. When I was first and finally diagnosed with Lyme disease, I was severely ill. Not only had I had Lyme for who knows how long active in my system, I also had a viral overload. Several viruses that we normally have once and then build an immunity to had reactivated in my system thanks to the bacterial infection. So, yes. I think treating with antibiotics was the best choice starting out. It took almost 9 months to truly see any difference in what I was experiencing. I didn’t herx either for about the first 9 months. I was one sick puppy.

Very rarely do I forget that I am still dealing with Lyme. It won’t let me forget. If it isn’t one thing, like severe fatigue, then it is another, like nausea and migraines. The symptoms seem to come and go with no rhyme or reason although the headaches seem to stay my constant companion. When my LLMD first started treating me in 2013, she said that “we want to progressively get to a point where you have more good days than bad.” Sounded like a great plan to me. And sometimes, that is the case for a few weeks at a time.

Recently though, I have had a string of pretty rough days in a row. As soon as I can, I will post about what is going on. Right now, I am just trying to put my nose to the grindstone and get through it. Consequences of this situation right now are that I cannot work, so I have been out this week. Of course, I am grateful that I have so much support at my work and people who understand, but I feel bad that my students miss out. But if it had to happen, this really is the better time of year since we are getting close to finals and summer break. It’s been an emotional rollercoaster for a couple of weeks, and I am really ready to get better and get back to work.

So for those of you with Lyme disease out there or a chronic illness, do you also experience a fluctuation in symptoms? Are they triggered by anything that you can pinpoint?

Peace -B

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8 thoughts on “Ever-Changing Symptoms

  1. Sharon Yvonne May 19, 2016 / 6:18 pm

    I not too familiar with Lyme Disease but this post prompted me to investigate. It sounds like a royal pain in the arse. I hope you feel better soon. It’s good that you’re sharing your journey. Maybe the right person will read this and it will help them 🙂 kudos.

    Liked by 1 person

    • ReadBetweentheLyme May 20, 2016 / 12:33 am

      Thanks, Sharon! I am hoping that by telling my story others can understand. 😊

      Like

  2. timewithlyme May 19, 2016 / 8:39 pm

    Now that I know what foods trigger my pain/inflammation, I am very careful of what I eat. I now have to deal with what brings on my fatigue. A week ago, I had a wake, a funeral, dance recital practice and then the dance recital. Two days after that recital, I had a doctor appointment 1.5 hours away from me. All those ‘extra’ activities, which normally would make me reasonably tired, have literally brought me to the weary state this week that I experienced early on. I definitely need to be more aware of saying no to things that aren’t really pressing…but I really felt I needed to be at all those events, especially the doctor appointment, since they had already rescheduled it twice! I hope you can find some peace soon. It’s such a roller coaster ride!

    Liked by 2 people

  3. Prior-2001 May 19, 2016 / 10:45 pm

    Hey – have you ever considered trying P & B shakes (it is psyllium and bentonite clay from sonne’s) and it has a nice detoxification that helps so many things….
    and I have not had lyme, but in 2014 I had to rebuild my immune system and did a lot of research – and I know the stubborn beast lyme can be – and the confections that go with it – and I know it hard to eradicate because it gets into your fat, tissues, and maybe even marrow, and well, sonne’s call #7 is just super special because it is “charged” and acts like a magnet to pathogens…
    just a thought nd feel free to email me if you want a little more info – I also know it might be exhausting to get a lot of tips and this and that – but as my mom always said “we are up until we win” = oh and I love the quote you had today – this getting back up truly is the key….
    have a nice day

    Liked by 1 person

  4. flowingthroughthefight May 20, 2016 / 2:35 am

    It’s such a B..I know what you mean. My doc was talking switching to just herbals after almost 2 years of abx..but I’m having palps tonight ugh who knows

    Liked by 1 person

    • ReadBetweentheLyme May 20, 2016 / 10:32 am

      It seems to never end. Kinda like that gopher game where one pops up, you hit it, then another pops up.

      Like

    • ReadBetweentheLyme May 20, 2016 / 10:40 am

      I really struggled with going off of antibiotics. I was so worried I would slip back to where I started.

      Liked by 1 person

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