Misdiagnosis is more common than we think when it comes Lyme disease!
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Read Between The Lyme
#LivingwithLyme
Misdiagnosis is more common than we think when it comes Lyme disease!
My fight against Lyme Disease
My journey battling late-stage Lyme Disease
It's just banter
A Place for Spoonies Medical Zebras
Fighting Anxiety & Depression with stuffed animals
Navigating with Chronic Illness in a Self Absorbed World
What Comes Next?
Navigating the nasty mess that is living with chronic illness, keeping in mind the sage wisdom of Lil Wayne ,"Bitch I'm ill not sick," Just out here trying to be the illest.
Chronically Reading
I’ve been dealing with CFS for close to 10 year and I’ve lately read of that some ME/CFS people have been finding out they have Lyme disease. Your post has convinced me to ask my doctor for a Lyme test.
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Hi! Yes I was glad to find you on Danny’s meet up! I saw that you have been dealing with CFS for awhile. I was first diagnosed with CFS and fibromyalgia back in 2012. But I pursued the CFS dx luckily and I tested positive for Lyme. I’m so glad you are going to ask your doctor about it! Only one caution, many doctors have no real knowledge of Lyme and tests are up to 50% inaccurate at least the main stream test. But I still think it would be worth it. I’m looking forward to being bloggy buds!! 🙌
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Awesome, me too! Thanks for the heads up on the test – I read that the proper course of action upon testing negative is to have another test done after a while, so I’m prepared to do that. Thanks for your blog!
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Oh then you are already going in the right direction! I tested 100% CDC positive first time Western Blot. I’m glad because if not I’m quite sure it would have taken me years longer to figure it out. I had heard about Lyme when I lived up north but it is never talked about here in Texas. Not on anyone’s radar.
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I live directly way above you in Saskatchewan – I drove all the way down to south Texas with a friend two years ago. I always knew I’d love Texas, and I did.
I’m going to mention the Western Blot test to my doctor. Is it considered better than others?
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Western blot and Elisa is what is used here in mainstream medicine. Most insurances will cover it, But….It can be up to 50% inaccurate! I usually hear people say they tested negative with this test. Many people use Igenex labs but it is not covered by insurance and runs about $250 I think here in US. They are based in California I think. Maybe Google Lyme testing and check out the WB. And check out ILADS.com This is the International group for Lyme and Co-infections.
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