Howdy out there! Well, yes, the Astros won the World Series, folks, and we here in Houston, Texas are celebrating! Good stuff!
So, just a quick recap: I’m now officially off all antibiotics for a 2nd time now in my 5 years of treatment for Chronic Lyme disease. Sure, lately I’ve been a bit paranoid, wanting to chalk every.single.everything. up to Lyme. I certainly try to keep track of any weirdness or symptoms cropping up. You know, JUST IN CASE.
Lately, I’ve been feeling pretty fatigued in the afternoons. It hasn’t affected my ability to work, but I certainly do not get much of anything done after work. I’m not really noticing too many other symptoms so that is encouraging. There was one day this past week that I had a lot of stiffness and joint pan throughout the day, and it’s been a few months since that has happened. Again, good news.
But, yeah, the fatigue can be scary. Ever since I was so very sick this past March, the fatigue kinda freaks me out a little, I won’t lie. It’s one of those lingering symptoms of Lyme and especially Chronic Lyme. It’s like a shadow that follows me everywhere. I can’t seem to shake it. Even when I was off during the summer, it was always there, lurking. I feel like I have to always be on guard about the fatigue. It swallowed me up whole this past Spring, and I wasn’t sure I would be able to come out of it. Luckily, I did but it certainly wasn’t a given. Fatigue is stealthy and ninja-like too. It comes on slowly but quickly too and before you realize it, the fatigue takes over everything.
When I’ve been in the dark depths of this illness, in the pit of the chronic fatigue, the pain, the headaches, nausea, there have been times where I have actually doubted my own sickness. What I mean is, there have been times when I have questioned whether if I am really sick. I’ve thought: maybe I am just lazy? Maybe I just don’t want to work or maybe I just don’t like my job anymore? Maybe I was sick, but I’m not anymore? Maybes, maybes. Why would I even question myself like this?
I think some it has to do with being ill for so long. I’m not sure. It took several years if feeling sick to get a correct diagnosis and then, in my case, even when I began treatment, I did not see any real progress in feeling any better for many years. I am sure there are many out there with chronic illness that sometimes doubt themselves. PLEASE DO NOT DOUBT YOURSELF, EVER.
Of course I am sick! In fact, I can almost remember the very day I realized something wasn’t right in my body and that was in November 2009. Then it took almost 4 more years and at least 8 doctors to get correctly diagnosed with Lyme disease.
I know it’s utterly illogical to think otherwise. Whenever I have a little more energy and if I feel a little better, I am doing things I haven’t been able to do in a long time. It’s so stupid to blame myself formy physical ailments. And yet. Those thoughts have crept in from time to time. Perhaps it’s some sort of weird coping mechanism? I’m not sure.
But now that I have a reprieve from a lot of the symptoms, I know that these doubts were silly. I have to keep reminding myself to trust my gut and to trust my instincts. They haven’t failed me yet. In fact, they are what saved my life.
Here’s a tidbit from Ralph Waldo Emerson’s essay “Self-Reliance” (we have been studying this in class and seems relevant. Maybe not, but I like it LOL):
“Every man discerns between the voluntary acts of his mind, and his involuntary perceptions. And to his involuntary perceptions, he knows a perfect respect is due. He may err in the expression of them, but he knows that these things are so, like day and night, not to be disputed. All my wilful actions and acquisitions are but roving;— the most trivial reverie, the faintest native emotion are domestic and divine.”
That’s exactly what I intend.
Have a happy week, friends. – b