Read Between The Lyme
#LivingwithLyme
Can I lay down now?
I woke up again last night about 3 a.m. We’re going on a few months of this right now, and all I can say is I’m Done. It’s only 10 a.m., and I can hardly keep my eyes open. I’ll be fighting fatigue all afternoon.
I’ve tried going to bed later, earlier, sleep meds, supplements, no devices, you name it. Some nights I can sleep a little better (more) than others, but pretty consistently, I am waking up at 3-3:30 a.m. and maybe, but most likely not, going back to sleep.
At this point, I feel like a zombie. Everything has become a little weird. Sometimes I think Is This Real Life? I spend most days struggling with the fatigue and just trying to get the basics done. Since December, I have definitely been in a CFS/FMS flare or episode or whatever we want to call it.
I’ve been able to manage to work full-time (basically). My job has been so awesome in letting me leave a little early as needed and my class schedule allows for this as well. Even leaving just 30 minutes early allows me to get home, take care of the anin]mals and lay down. I have had to take a few days off here and there, mainly to sleep and rest. I’m trying to avoid taking a medical leave; we’re already really strapped for subs because of COVID.
My LLMD started me on some antiviral drops for the EBV titers and a hormone cream to help with mood swings and hopefully, sleep issues. I’ve only just started both of those. Please let them work!
At least it is Friday. And only a week more until spring break. I’m hoping the sun comes out this weekend! 🙂 Be safe – B
Thanks for Spreading the LOVE!!!
27 Comments on “Can I lay down now?”
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Read Between The Lyme 
I truly empathize, I have real trouble sleeping too.💜💜
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Thank you. Ugh. It’s the worst. Any tricks? 🙂
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I try not to use any phone or laptop an hour before bed, and not even look at phone once in bed. Listen to restful music and try to envisage a safe cosy place. But in all truth it’s so hard.💜💜💜
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Same here. No devices. My mom got me a Calm subscription for my birthday. I’m loving the Sleep Stories they have. Helps me go to sleep. But it’s the staying asleep that’s hard! Ugh. Hope you get some good rest soon xxoo
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Yes I know what you mean, sometimes I awake and think I have slept the night only to find it was half an hour or if I am lucky an hour. Then it takes hours to get off again…. Sleep is so elusive. 💜🦋
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Try taking Allithiamine (a special form of vitamin b1) and upping your magnesium, B2, and other vitamins. I’m doing this now and am free of most lyme/cfs symptoms.
Please read the book written by dr. Derrick Lonsdale, Thiamine Deficiency, Dysautonomia and high calorie malnutrition. It’ll put CFS in a whole different light.
It has helped me way more than any lyme treatment. From 2015, I’ve been waking up at 3 am, every night, until I started this regimen 5 months ago. Every other thing I tried either had no effect, or the effect would wear off in a week or so.
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You can read the book on Scribd. 🙂
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You may find a couple of articles by my Lyme guru, Bill Rawls MD, helpful. . .
https://rawlsmd.com/health-articles/hormone-aging-chronic-illness-connection
https://rawlsmd.com/health-conditions/sleeplessness#addsearch=menopause%20and%20insomnia
May you rest in relief soon! ❤ ❤ ❤
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Thank you!
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I can definitely relate. Hope you find something that works for you!
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Still searching! But will let you know if I find something awesome!
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Thanks for swinging by the “Ranch” and for the follow. We 💙 visitors. Hope you are able to catch up on the rest. I’ve suffered from insomnia for ages and know how frustrating it can be. Can you use some lavender essential oil-it tends to help me out somewhat.
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Hi! Glad to find your blog. Hope the storm this weekend isn’t too bad. Ugh sorry you deal with insomnia, too. I never had an issue until I got Lyme disease about a decade ago and now it’s probably compounded by hormone changes. I have periods where it’s better, but right now- no bueno. Thanks for the suggestion! Take care!
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Thanks. Hope you have a great weekend.
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You too!
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Best wishes for you, my friend. I am also going to late-night sleep and trying my best to overcome it. But still hoping for the best. I hope you will soon overcome it.
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Thanks! I hope you can as well!
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Yeah, I am…
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Long time never heard from and never got a link back to my blog posts like https://idealinspiration.blog/importance-of-body-language-in-communication/
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Not being able to sleep is the worst! I have Chronic Lyme, Endometriosis, & Ulcerative colitis & have had sleep issues off and on. About 1-1/2 years ago, my doctor & I decided I should slowly wean off Klonopin as I had been on it for 15 years to help sleep. It took a little over 6 months to come off a low dose and 3 of those months I literally did not sleep. I’m retired so most days, I could sleep if my body let me. I eventually needed some medication to sleep so I could function, so I took 1/2 of a 50 mg. Trazadone tablet & finally I began to sleep. Prior to that, I tried just about every sleep supplement I could get my hands on to no avail. I pray you find something…or several somethings…to sleep. Oh, this Lyme does crazy things to your body, doesn’t it?
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Hi Jackie, thank you for sharing. Wow, you’ve had to deal with this for quite awhile! I did get some new meds from my doctor Friday, doxepin, but I don’t know that it’s really helping at all yet. We’ll see. Take care!
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I take up a boring book. I get sleep in no time.
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The very next time I read a blog, Hopefully it won’t fail me just as much as this one. I mean, I know it was my choice to read, but I truly believed you would probably have something useful to say. All I hear is a bunch of moaning about something you could possibly fix if you weren’t too busy searching for attention.
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Plagiarize much!?!
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I’ve had this comment come to Spam before Maybe you shouldn’t plagiarize and have your own ideas.
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The next time I read a blog, I hope that it doesn’t fail me as much as this particular one. I mean, Yes, it was my choice to read, but I genuinely believed you’d have something helpful to say. All I hear is a bunch of complaining about something that you could fix if you were not too busy seeking attention.
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Plagiarize much?
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