I’m struggling. I’ve been fighting the fatigue for awhile, but for sure it’s reared its ugly head more and more since Thanksgiving.
My out of town doc put me on a very low dose of oral hydrocortisone that I started about Nov 30th and that helped for a bit. Since I’ve never tried this in the almost 9 years of this illness journey, she wanted me to try it out. I’m usually open to trying new things that are doable with our budget.
Boy-oh! I’m not going to lie. Within a few days of starting this med, I really started feeling better. I couldn’t believe it! I had more energy throughout the day than I’ve had this past year. And all at a very stressful time of the semester! My brain felt like a light had turned on. I could think more clearly and stay focused. While this time between Thanksgiving and Winter break is usually a very difficult time for me – grading, finishing high school and college finals and semester grades, etc.- I was able to take it in stride.
At the start of winter break, I was hopeful and looking forward to the holidays. And then. I’m not sure what happened. I did get the covid booster on December 21st. This time was Pfizer whereas my original vaccine was J &J in March. I had no issues in March so I figured no big deal, right? Not so much. I received the shot about 2 p.m. and by 9 p.m., I had a terrible headache and nausea. By early the next morning, I was running a 101 fever with a horrible headache, joint pain, and nausea. I stayed in bed most of that day. By Thursday, I was up, but not feeling great. I have no idea if the booster pushed me over the edge of course, but my H- town doc, when I saw her the 27th, said sometimes, vaccines can cause inflammatory responses. But even then when I saw her, I was feeling better and thought all was good.
But that’s how it goes some or most of the time with chronic illness. It’s a management issue day to day, hour by hour. By December 30th, I was really struggling. I couldn’t get up in the morning. Awaking, I would have a headache and nausea or stomach cramping. I would drink alkaselzer and head back to bed, mostly to sleep. Until 9:30….10:30….11:30…I would then get up, do a few small things, eat some oatmeal, and back to bed. This continued through the weekend. And Monday. We started back to school January 4th but there was no way I was making it.
The rest of this week has been much of the same as last. Mornings are the worst. I’m trying to rest when my body tells me and that’s most of the time. The past few days I’ve been able to stay upright for a few more hours each afternoon; I’ll take the little wins. On Monday, I’m heading back to my H-town doctor, and we’ll see what she thinks. I did blood work for her on the 27th, but I guess with the holidays, COVID, etc., my results are still not back.
I’m trying to stay positive and not beat myself up about not being at work for my students and for my colleagues. When my brain can semi concentrate, which right now it’s mostly brain fog, short term memory issues, and lack of recall, I’m trying to do some work from home.
I’m grateful that I had winter break. And that I still have a few paid sick days left. And that I have colleagues who are very understanding and supportive. That I haven’t been out of work this much for a few years. That my husband and my mom get it.
But it’s still scary. Right now, I’m trying to just take it day by day and not worry too much-yet-about what things will look like moving forward. That’s all too much for my mushy, foggy brain to deal with right now. Maybe tomorrow.
BTW, the handsome boy featured is Newton, one of our smart and clever young sirs. I think he is the most clever! 🙂 Wishing you all joy in this new year. Take care – belle