Hard to believe

Posted on June 27, 2022 by

32 Comments

After a decade of chronic illness, I’m still surprised sometimes. Not just 6 months ago, I was almost bed bound. I could maybe manage 3-4 hours upright daily with very minimal activity. I had to take a medical leave from work.

Last week we spent in Colorado with my in-laws. We were outside doing something every day. Hiking, swimming, white water rafting. Granted, every day I had to lay down for an hour or so to recharge, but I was so far away from the me I was in January. I know that being on vacation can definitely help mask some symptoms, etc. but it was still a gift to be able to feel mostly like a real functional person for a bit. 🙂

With chronic illness, things can change in an instant and so I’m really trying to be grateful for this small reprieve I’m having right now.

I hope you and yours are having a good June 2022. Take care. Peace-b

Category: chronic illness, The PresentTags: , , , , , , , , , , , , ,

32 Comments on “Hard to believe”

  1. Loving this post… for soooo many reasons! Hope (and pray) that this upswing and reprieve from symptoms continues. Sending happy-dance vibes and hugs your way!! —Terry xx

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    • Hi Sherry! How are you doing? It definitely was worth it like you say. So far, back at home, I’ve been able to keep a similar pace. I just need to be aware not to overdo it. Take care my friend!

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  5. What wonderful news! I’m so glad you’re enjoying your vacation, and hope this is only the beginning of a long, healthy time in your life. And just so you know — needing to rest for an hour in the middle of the day is standard procedure for a lot of us!

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      • It doesn’t take anyone who spends time outdoors in Texas and the southwest very long to gain an appreciation for a siesta. Mexicans aren’t lazy; they’re smart!

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  10. I’m happy for you, Belle. When our mental health is good, our physical health is usually in a better place. Going to Colorado and enjoying your family and its beauty was probably just the right medicine. I’m not giving away any secrets here, but I notice how much better I feel when I don’t have a lot of stress in my life.

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    • Hi Pete, thanks for stopping by. I always appreciate your insight. You’re 100% right. The trip helped me. I love my in-laws dearly, and I haven’t seen them in a year. We also were able to do activities outside every day we were there, so that was good for my nature-loving soul! 🙂 It also made for a nice segue from the school year to a real break which was much needed! I hope you and yours are doing well.

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  11. Thank you for sharing!!.. wonderful to see that you are feeling much better, you go, girl!!.. hopefully it will be long term and the start of something good…“Victory is not always winning the battle, but rising every time you fall” (Napoleon Bonaparte)… 🙂
    One’s mindset can have a great deal to do with one’s health and as far as naps go, I will not hesitate to take a nap depending on my activity, weather, etc… and I believe the Spanish invented the nap, they call it a Siesta.. 🙂

    Have a wonderful day and until we meet again..
    May love and laughter light your days,
    and warm your heart and home.
    May good and faithful friends be yours,
    wherever you may roam.
    May peace and plenty bless your world
    with joy that long endures.
    May all life’s passing seasons
    bring the best to you and yours!
    (Irish Saying)

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    Reply

    • Thank you, L! Your words inspire me! I’m trying to just ride this wave right now for sure. So many people have shared that they also rest and/or nap in the afternoon. It’s obviously something many of us need to keep our spirits happy. Take care, friend.

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  13. Nothing better than our chronic illnesses giving us a bit of respite! Lovely post to read and well timed for a nice vacation ☀️👍

    Liked by 1 person

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  14. When I first chanced upon your blog something inside me startled. I too have suffered from Chronic Lyme disease for years and I know all about it. I feel blessed every time when I say that I’m cured, happily married and expecting our first child 😊
    Id love to read your story and hear more about what you’re going through and what/ how you’re doing to manage your pain.

    Liked by 1 person

    Reply

    • Oh hi, lol I think I’m reading your replies out of order! Sorry! 🙂 I usually can manage ok. My department chair and my principal are really supportive and so my schedule has some flexibility in it in case I need to leave a little early. I used to not really say anything about it but then with the chronic fatigue which comes and goes in severity, I had to share my situation. I did have to take a medical leave this past spring due to the fatigue, but luckily, I haven’t had to do that but one other time about 5 years ago.

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Richard Horowitz, MD

June 2022
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