Tag: brain issues

What A Week

I wasn’t sure I would make it through last week. It’s almost Spring Break, and I teach  high school dual credit English courses. We are in the midst of our research unit. Must I say more? Truly, it is the unit I love and despise the most. I love it because I get to talk with students about their interests, what they think about topics, and their ideas. I despise it because students usually have not been required to do any kind of research in the past (or if some, very little) and so there are so many things they need to learn that it becomes very overwhelming. Especially when there are 145 of them and one little ole’ me.

But every year, I consider changing up this unit, and I just don’t. One of the most challenging things for students is that they get to pick their own topic and narrow it for the paper requirement (take a position). This really throws them for a loop. Choice? What do I want to do? I have freedom?  While I could just assign them all the same topic such as: Take a position on whether we should continue to use the death penalty in Texas, I just can’t do it. I feel like doing it that way just isn’t authentic.

And so here I am. Tackeling so many different topics from all kinds of perspective which I love/hate. Plus, this past week, my brain has been very, very jumbly. I don’t quite know the exact word for it. But while on a good day I still struggle with cognitive issues, word loss, brain fog, last week it hit an all-time high of barely functioning. And while I am a little worried, I honestly think it is worse right now because of all of the stress.

A new symptom though that has popped up, is changing aroung letters. That hasn’t happend to me before. Yes, I can’t remeber certain words many times. Easy words like door or watch. But this past week, when I would go to type or write out a word, I would begin to jumble the letters. Strangest thing ever. I would never get further than about 3 letters in and realize – What the Heck- but again, I’ve never had this before.

 

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And of course, between struggling for words, short term memories, and spelling correctly, the angst from that caused more stress for me. I am fully aware of what I can’t do. But no matter ho hard I try to get my brain to work correctly, it doesn’t. To some degree, it’s easier to be at work with these issues that anywhere else. Sounds a little cray, right? But I think that after 18 years of teaching, that environment I have to some degree mastered in a way I can function and cover up my brain issues.

In other areas, not so much. My husband has been frustrated with me because I can’t communicate well. I sometimes don’t remmeber things he tells me. I can’t speak well. I told him the other day that I was really struggling with brain issues and that it was way worse this past week. He said, “Well, it’s nothing new.”  And while I think he was trying to be nice and blow it off, I won’t lie; it really hurt my feelings. But maybe it’s the truth and one I don’t want to hear. I see one of my doctors March 11th and I’m definitely bringing these issues up.

Anyway, back at it tomorrow. The weekend helped a bit, but my brain is still not back to a good place. I’m hoping during Spring Break, my brain will get back on track. Or at least seem that way to me so I can pretend I am doing better!  I hope your week went well.

Take care – Belle

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Muddled Brain

Hi my people. I know, it’s been a minute. I’d like to say “Oh, hey! I’ve been feeling SO much better that I am off having mad adventures!” but that isn’t the reason for my absence. Unfortunately. However, it isn’t because I’ve been so bad either. The honest truth is that, well, I’ve been doing my best to finish up the school year and cross the finish line for 2017-2018. And here I am!

Lately, the muddled brain is back. I guess it is brain fog, but it feels different than when I first was sick. Back then, my brain didn’t and wouldn’t work at all. It was a struggle to read even and that was despairing. I couldn’t form thoughts, my short term memory was null, and trying to say basic words? No way. It was frustrating and scary all at the same time.

Slowly, and I mean soooooo slowly, my mental skills have been improving. Reading has become easier, although I still struggle with longer texts, and I have started to join conversations again without fear of completely forgetting my train of thought.

But,  recently, maybe in the past 6-8 weeks, things have started to sneak in and/or get worse when it comes to brain function. It’s worrisome. Yet, I wouldn’t describe it as “fog.” At this point, it’s more a jumbling of thoughts in my brain that I can’t sort out. I concentrate and try to spread the thoughts out or I try to separate them into like categories, but I just cannot.

It’s more lik I have 50 thoughts going on in my head and when I try to follow one thought logically and progressively, I just cannot. So the thoughts spin and spin and then maybe, if I am lucky, they just hit a wall and stop for a bit. However, none of this is helpful when trying to actually do something that takes any concentration, say like, Problem-Solving. OMG. And it is frustrating becuase behind all of the basic shallow ideas and thoughts I am able to have and to follow to get me through the day to day, I know there are more in-depth things going on in this brain of mine that are just inaccessible. 

But otherwise today, I just want to say HI and get back to it with you. I hope your all is going well. I hope you have had some, I mean many, joyful moments. – belle

 

Who am I?

I know we all ask ourselves this same question at any given time of the day, week, or year. But since beginning my journey with a chronic illness, I ask it even more than I used to. And now when I ask, sometimes, I don’t know the answer and that is so freaking scary.

An introspective person by nature, I live in my inside world much of the time. And I like it. In fact, if I don’t get enough of that time on the inside, it makes me a little bit cra cra. Stressed. Deflated. I’m not anti-social, just to clarify. I like people. Learning the intricacies of human nature is something of a calling for me; I am a hard-core people watcher. At least I used to be. I used to be better at people. You know, observing them, listening to them, interacting with them. My core has always been my sanctuary. Then along came Lyme.

Although not a fan of worn out cliches, Lyme indeed threw me a “curveball.” Not in the sense that I had my life all planned out and wham, but in the sense that, well, I never saw it, this, Lyme disease, coming. Then, in reality, everyone can use this cliche. I mean, I would guess that most of us are not sitting around thinking, “oh, today something life-altering will happen to me.” It just does. It happens. We do our best to deal and to move on from whatever is thrown at us.

It’s just sometimes, I feel like I missed the curveball. I missed the pitch, the swing, hell, I missed most of the game. It’s almost as if I have been plunked down onto the field, and we’re well into the 8th inning, and friends, I am not winning. I don’t have a strategy anymore. I’m confused about what inning it is. I’m calling a time out with none left. It’s a weird feeling. Maybe not so much as a feeling of being altogether lost, but a feeling of being very disorientated.

Everything about me seems more vague than it ever was before. Lyme has seeped its way into my neurological system, into my brain. Weaving itself into my memories, my thoughts, my ideas, my authenticity, I can’t navigate my way through any of it. I keep telling myself that my foundation, the true me is there, stable, indestructible, unwavering, and most of the time, I feel that this is true. But there are the other times. The times where I struggle to find my way back to Me, to the inside world. Lyme chips away at short-term memory. It can produce “‘a microedema, or swelling in the brain,’ says Bernard Raxlen, MD, a Greenwich, CT, psychiatrist and secretary of the International Lyme and Associated Diseases Society (ILADS)…”

Not remembering how to spell words, how to say a certain word, how to have conversations, are only a few samples of the brain issues related to Lyme that I experience.  “This [Lyme disease] affects your ability to process information. It’s like finding out that there’s LSD in the punch, and you’re not sure what’s going to happen next or if you’re going to be in control of your own thoughts,” Dr. Raxlen adds. Ergo the missing of the curveball pitch. Ergo the forgetting of people’s names, of what I just read, of what I just said 5 minutes ago. Even my long-term memory is in shambles sometimes. I try to recall something, digging deep, sifting through that soupy glob of eating cotton candy at a carnival when I was six, scrubbing dishes at the little Mexican restaurant where I worked when I was nineteen, and throwing bales of hay into the wagon when I was ten, all the while merely just trying to remember how to say “FHA” without stuttering 10 times when I get the the “H” on the phone with a customer rep. And, yes, this did just happen to me. Embarrassed doesn’t even begin to describe what I felt as I struggled to get the sound out of my mouth. Let’s try lost, disconcerted, terrified. Yes, that sounds about right.

How will I be able to stay whole if the very center of myself is starting to fade away? If I can no longer reach my inner sanctuary to have a clarity of vision? To know Who I am, my true authentic self?

Who am I?
Who am I?

 

Holding on with all of my might, embracing all the pieces available to me still, I’m going to get my head back into the game with as much clarity as I can muster, so to speak.

Take care Warriors.

Until next time – B

**If you get a chance, check out “This is Your Brain on Lyme” by Sillia. It explains in much greater detail and with less philosophical musings, the effects of Lyme on the human Brain. A huge thanks to Sillia.