A Week Long Lyme Headache

I woke up this morning, early, and I was really excited because I didn’t have a headache! Yippee, thought I. And then I realized that I’ve had a headache for over a week now. Maybe 10 days? It subsides off and on, but I think it is the same damn headache. Maybe not, but that really doesn’t matter all that much. The pain matters more.

It may be the insane weather we are having. Last week at this time, it was 80 degrees. Then by Sunday, it was 27 degrees out. And today? A rainy and moist 75. Seriously. So, yeah, there’s that. It may be that the semester just ended and even after 16 years of teaching, it’s still pretty stressful. More stressful when chronically ill. So, there’s that too.

There have been a few days these past few weeks where I just keep taking medicine and hoping one of the many selections will just give me some relief, and periodically something has. Usually it is maybe an hour or so at a time. Then, the monster returns. It isn’t a migraine. It’s just a constant pain inside my skull.

Before Lyme disease, I rarely had headaches. The only headaches I experienced were either alcohol induced or hormonal. Indeed, I was a lucky duck. My mom has had issues with headaches her whole entire life including migraines. And my husband also has migraines periodically that lay him out for most of the day/night.

Then, in the fall of 2012, I began to have daily headaches. Not crippling, mind you, but just enough pain to not be able to ignore. Every day at work, by noon, I could feel it coming on (or maybe it never really went away). Sometimes, nausea would accompany the headache. The Daily Headache continued for months on end. Of course, there were a multitude of other symptoms going on but the headaches were something quite new and stood out more than say the fatigue or the periodic joint pain.

When I saw the Worst Infectious Disease Doctor Evah (although statistically, ID doctors are NOT LYME LITERATE) in January 2013 with a solid 25 symptoms including the onset of the new Daily Headache, he told me to drink more water (since I was hospitalized with a horrible kidney infection in 2006 I drink almost a gallon of water daily). The ID doctor dismissed every single symptom I explained to him but the bitterness of that particular doctor visit is for another time. Needless to say, almost all of my symptoms were classic LYME DISEASE symptoms and luckliy, I was diagnosed (and CDC positive) less than 6 weeks after this visit with the dismissive ID doctor. Anyhoo!

As I moved into oral antibiotic treatment, the headaches continued except at some point, I can’t pinpoint when, I began to have migraines. WTH! Migraines really suck! I now can empathize way more with my mom and my husband and others! Hours and hours of pain, nausea, ugh. For a while, and I can’t be more specific because of my short-term memory issues (LYME symptom as well), I had daily headaches and then migraines in between. Good times. I am so sorry if you suffer from headaches and/or migraines, my peoples!

When my LLMD took me off of antibiotics full-time last November 2015, I still had the headaches. And the migraines. But, slowly and surely, these daily headaches and the migraines began to let up a bit. So, for the past few months, probably since say June (again, short-term memory loss!), there’s been a reprieve from the daily headache. Since June, I’ve had maybe 3 full-blown migraines. This has been progress! I think that this progress has been the result of many things coming together at once, such as Lyme treatment (after so many years going untreated) and dietary changes.

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But, since Thanksgiving, my diet has been seriously not so good. I had cut out all sugar, carbs, cut down on wheat and corn products. Oh, Thanksgiving. I mean, I haven’t gone totally CRAZY with eating sugar, etc. but I have been drinking more soda and well, I sure haven’t been grain-free. I plan on getting right back on my diet after Christmas. I can see now that it has helped me to control some symptoms and while it was a bit of an adjustment to new eating habits, it certainly is worth it.

Like I said, this headache started about a weekish ago. On my last day at work, before Winter Break, I sat in my classroom, in the dark, just trying to work through the pain (no worries, I didn’t have students LOL).  Saturday was much of the same. At least this week the headache hasn’t been a full-blown migraine but still. I’ll tell you though, I most definitely appreciate the time I have without headaches now. Pre-Lyme, I never noticed how wonderful it is NOT to have a headache. Chronic Lyme disease continues to teach me lessons. Hey, just trying to stay positive! 🙂

And, here comes my little friend. Back again today. Time to rest a bit. 

Toodles friends – B

 

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Axon Optics – A Review

** “I have been given this product as part of a product review through the Chronic Illness Bloggers  network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company.” **

I’ve always had sensitive eyes. My eyes are blue, and so anytime I am outside, even on a cloudy day, I have to wear sunglasses. But since contracting Lyme disease, the light sensitivity has increased, and I have to be careful about too much exposure to light, both outside and inside.

With this light sensitivity sometimes comes a migraine. I never had these either before Lyme disease. Now, I have daily headaches and periodic cycles of migraines. I have found that light can be a trigger for a migraine. I am especially sensitive to fluorescent lighting which is pretty much everywhere!

Axon Optics to the rescue!
My new pair of glasses!

So when I was given the opportunity to try out Axon Optic eyewear, I jumped at it. Axon Optics offers special glasses and sunglasses for light sensitive migraine sufferers. As a part of the review, I was able to pick from 3 different frames. Axon offers their eyewear with prescription and without. As I wear contacts most of the time, I opted for the glasses without prescription. Axon offers a wide variety of frames both modern and classic making it easy to select a pair of glasses that complement the wearer’s face shape.

When the glasses arrived, I was really excited to try them out, especially at work where all of the lighting is fluorescent. The glasses were the exact frame I had ordered and the lenses were a tinted rose color. Hmm, I thought. These will be pretty different from other glasses most people wear.

At first, I was hesitant to wear them while I was teaching. I teach teenagers and well, as we know, they are not forgiving when it comes to fashion. Again, the rose tint makes these glasses stand out. But one morning while at work, I felt a bad headache coming on, and I bit the bullet. I began wearing them about 8 a.m. Pleasantly surprised, I received many compliments on these glasses from both co-workers and students!

Happy

I wore my glasses all day that day, and I kid you not when I say that I began to experience relief within a few minutes of putting them on. It was almost like a protective screen immediately came down between my eyes and the lighting. The rose color was soothing. Since being diagnosed with Lyme and chronic migraines, I do have migraine medication that I can take as needed. But since receiving my Axon Optics lenses 2 months ago, I have only had to take the migraine medication twice.

I carry my glasses with me everywhere I go now. When I begin to have even the slightest headache, I pop on my Axon Optics glasses. These glasses are also very versatile; I wear mine both inside and outside in the blaring sun. No need to switch over to sunglasses when I leave work. My Axon Optics do the trick!

If you suffer from migraines or even light sensitivity, I would highly recommend a pair of these glasses. Not only have they helped me reduce the number of headaches and migraines I experience, they have also helped me to cut down on the medication I have to take. In the future, I am going to invest in a pair of Axon Optics prescription glasses so I can have a pair to wear with and without my contacts in.

These glasses do everything the company promises and more. Please take a minute to visit the company website, Axon Optics, or their blog for more information.

P.S. Right now, Axon Optics is offering Free Shipping on all orders through November 15th!

Thank you for your time! -B

Be Good to YOU

 

So we’ve (as in my husband and I – we are both teachers) been on summer break almost a month now. It has been pure heaven. What have I been doing? Producing? Well absolutely nothing, my dear friends. I’ve had some doctor appointments, dentist, eye doc, you know, just those things that have been impossible for me to manage while working because of the massive fatigue.

But otherwise? I have nothing to show. And how do I feel about this? Delightful!! Fantastic! Superb! It is down right, totally fine. I used to feel guilty about not doing anything, or not being productive every minute of the day. I was always busy. Now, at the time, I enjoyed being active, working, exercising, socializing, and such. But Lyme disease changed all of that.

Over the years (even before I knew I was ill), I’ve struggled with a lot of guilt and angst about not doing enough (these are, of course, self imposed standards of “enough”). I would push myself, as I always have, to make “things happen,” to “get er done” as we say in Texas. While resting, I would stress out about the things I had (self imposed!) to accomplish that I hadn’t completed. Then came along nausea, headaches, joint, pain, severe fatigue. Well, all of this made for a witch’s brew of toil and trouble!

Now, I admit, it has taken time to make this change and there are still times when I click into that previous me mode, and I take it to the limit. It’s usually not a good thing though and if I can catch myself before that manic phase kicks in, well everything is better overall. 

Looking back over my 15 years in education (I worked 10 years outside of education so I most definitely appreciate the time off), I realize that I have worked almost every summer for the first 10 years. First, out of necessity, and then, for the extra money and experiences. These past 3 summers of Lyme have been about treating and resting. Actually, the first summer after being diagnosed I taught a 3 week class. What was I thinking? At the time, I thought, oh good, extra money and this Lyme thing will probably be done by the end of this summer after treating for about 4 months at that point. HA HA!!! That was BEYOND wishful thinking for reals!

Anyway, I know this post is kinda all over the place, but I guess one point I am trying to make is Take it Easy. Don’t Kill Yourself trying to do everything you did before. Your body has to heal. You beating yourself up about it is certainly NOT GOING TO HELP your recovery process. Believe me, I learned this the hard way. 

keep-calm-and-be-good-to-yourself
Source: http://www.Keepcalm-o-matic.co.uk

 

 

What are some ways you treat yourself well? In what ways are you kind to yourself? Please add your ideas to the comments below. 🙂

Remember Please:

BE GOOD TO YOU!

Peace – B

Escaping Lyme – Memory #1

When I feel really horrible, a migraine, nauseated, joint pain, and it is difficult to be here in the “present”, I escape if at all possible into my mind, into my memories. Usually, it is a worthwhile distraction.

 

When I was a child, my family and I lived in Upstate New York. My parents married young, my mom 19 and my dad was 21 or 22? My father became a high school Physics teacher in a rural New York township and my mom stayed home with us, me, then my two brothers. I think I was a little over a year old when they bought a very old farmhouse. Located on a mountain and accessed by a dirt road, we were isolated as the only family in that area to stay year round. There were other homes up in that area, although one could not see them from our house, but these other places were weekend retreats for New Yorkers who lived in the City. We lived in this house and in this area until I was 12. Most of the memories I like to escape to are from this time period.

Memory #1 Escape – Snow:

Sometimes, when I feel so horrible I like to think about the snow. Yes, of course I romanticize it; I wasn’t the one trying to keep the house heated, or the one trying to get to work. For me, snow was always awesome and amazing. One of the best feelings ever is being outside in the deep, deep cold, the silent, penetrating cold, breathing hot air into the ski mask you have on because breathing in the cold air hurts your lungs. It’s the simultaneousness of breathing in the bitter chill, burning your lungs and nose hairs alike, then breathing out the hot, the hotness of your breath that turns to steam that rises on your cheeks and into your nose.

So snow. After the storm rides through, it becomes an irresistible and impenetrable quiet. All I can hear is the crunching of my moon boots through the crusty topping of the snowdrifts. If I stand for a minute, the silence itself is almost a sound. Some describe it as a blanket, the snow, but more so and for me, snow is a buffer from the outside world. Out in the wintery landscape, one feels enveloped and safe, encapsulated in the moment. Nothing breaks the eloquent silence and you don’t want it to ever end. The closeness. The buffer. The insurmountable quiet.

It’s cold but I am wearing a snowmobile suit. It takes forever to dress this 6 year- old ragamuffin. First, gloves, hat, scarf. Then legs of the suit and slide into the snow boots. Now, arms in, make sure the gloves are tucked into sleeves (this is why we put gloves on first), then zip up. OH. Make sure to go to the bathroom before dressing for outside. We never had ear muffs. Always a ski hat pulled down over the ears and maybe another scarf wrapped around the ears and the nose/mouth.

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Heading out into that stillness, that world of endless white, hours of pure fun and exercise awaited us. One time, a blizzard came through at Easter. It blew hard and the drifts were monstrous. When it finally subsided, my brother Brad and I headed out to the side yard along the rock wall. The drifts were utterly amazing. We started digging. The snow was perfect. The outside of the drift was caked together and solid. It held fast as we tunneled into the pillowy insides. We worked for quite a while, scooping and moving snow. Finally, we could both sit inside. We laughed at our good fortune and our lovely handiwork. Our little hangout held fast for several days until it started to warm up a bit and began to melt.

Our faces burn red from the frosty air. When we get inside next to the warm fire that reaches into our muscles and works into our bones in a way like nothing else, our mom will put Bag Balm on our rosy cheeks and our noses so they wouldn’t chafe. We’ll be exceptionally tired out. The kind of tired that feels good though, you know? While we unthaw, we put up our suits, shake off our boots, put everything by the stove so it will dry out. Once warm, we can barely keep our eyes open to eat even though we are starving. We drift off to sleep into one of the very best night’s rest we’ll ever have again.

Peace out there today – Belle

Stop Making Plans

So here we are, a Thursday afternoon. Another day of rain. Another day of school closure. Yes, you are correct. We live in the Houston area. Our little own piece of paradise or the “mud pit” as my HB calls it is located outside of the metro area and just west enough to avoid the horrible and devastating flooding that has been happening.

With all of that in mind, my own small world is truly not of any concern nor should it be.

And yet, I will share. Yesterday, one of my friends, let’s refer to her as WF, texted and invited us to meet her and her husband for dinner. My HB was gone to get groceries and run errands so we instead decided this evening would work better. OK. Cool.

Except that, and I know this very well, often, because of my symptoms, we have to cancel plans. My friends know this as well. The day started with my stomach in turmoil. Headache. It rained for several hours this morning. Joy. I took anti-nausea meds and lay back down for a few hours. Back up about 2 p.m. I went outside with the dogs and got a bit of fresh air. Back inside to do laundry, mopping, and such well, you know, “mud pit.” I consumed a few crackers with almond butter. Then, the nausea returned. The bandage is to take the meds…and I have been doing this now for a few months. Instead, I drank some alka-selzer gold – no aspirin – which can help a bit.

Still no relief. The only way to describe what it is like to a non-lymie is it feels like the flu. Headache accompanied by a nauseated tummy with a possible side of indigestion. Lots of fun. A perfect situation to go out to eat at a restaurant. Yeah, not so much.

The conclusion? We had to cancel. My HB kept asking me if I just wanted to go and have drinks, if I wanted to go without him. I know he meant well, but feeling bad is feeling bad. In fact, he’s cooking up some vegetables right now and the smell is making me nauseated. Please don’t tell him.

Anyway, to make this long story longer, when I told my HB that I was feeling yucky and that I couldn’t make it, he said, “Really, you just shouldn’t make any plans. You always cancel.”  Wow. OK. Yes, there is a lot of truth in this statement. And honestly  recognizing that truth is what grabbed and twisted my heart. I could only reply, “You are right.”

Still. While I do know that breaking plans is disappointing not just for me but for everyone involved, I just shouldn’t do it at all? Then what? I can barely keep up socially at all with my friends and family. I miss more functions than I can attend, that’s for sure. But, I don’t know. Anyway, I’m back in bed now, trying desperately not to be bummed out about it all but it’s pretty much not working.

I short change everyone in my life. I realize that yes, I am sick, but disappointing so many other people surely has taken its toll on me as a person. I feel less than. Not all of the time but definitely right now. My friends were gracious as always about our cancellation. But for me? My heart still feels twisted up.

Be good and safe, my people. -B

Nobody Said it was Going to be Easy

TGIF! Wow. What a week. I really hope yours was better than mine. As I have mentioned in some of my previous posts Turbulence of Lyme SymptomsFire in the Hole, and Derailed, there is a lot of inconsistency in how Lyme will manifest itself each and every day. There are some things, in my case, that stay pretty constant such as daily headaches, joint pain, and fatigue. But then there are those other issues that crop up from time to time, I guess maybe they are flares?, and it is impossible to prepare. What’s the saying, the devil is in the details?

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And so last Sunday, I started having severe nausea. It lasted the entire day. I couldn’t eat, sleep or do anything. I just laid in bed, trying not to move around. The moving made the nausea worse. Indeed, it was a day where I just wished I could get out of my body for even like 10 minutes to get some relief. I chalked it up to eating some jalapeno sausage that morning; I knew I shouldn’t have eaten it but it was delish but soooo not worth it.

Unfortunately, no. The illicit sausage was not the problem. On Monday, when I tried to get up to get myself ready for work, I felt really nauseated. Then, the headache joined in. There was no way I could make it to work, let alone teach all day. Monday and Tuesday were more of the same. In the meantime, I was trying desperately to get into my Lyme doctor (LLMD) but there were no appointments available- for the entire week. Whaa? They were very clear that they could NOT fit me in even if I came in when they opened and waited. When I explained again my symptoms, the front desk told me that a nurse would return my call that afternoon. That was Tuesday. By Wednesday evening, no one had called me. Although I was able to get up and go to work on Wednesday, by that afternoon the nausea was back rearing its ugly head. Now, please do not think that I have an entitlement issue. I realize doctors are extremely busy and overbooked. I realize that there are other patients out there who also need to get in for a visit.

On the flip side though, this is my doctor who is treating me for Lyme disease. I can’t just go “anywhere” to get treatment. Other doctors, and almost all here in the South, are not trained on Lyme nor do they actually believe it exists here in Texas. This is the state of the medical options we have for Lyme here and in way too many other places in the US. In fact, Lyme is endemic to Texas. Check out this research done by Texas A & M University “Lyme Endemic to Texas.” Thus, going to another doctor is really more of a waste of time than anything. The ER was an option if I started having other issues, but mostly it was the severe nausea that was the new thing. All of my other symptoms are dealt with in the daily grind; they ebb and flow. But the nausea. God, it was (is) the worst.

It feels like I need to throw up (sorry TMI!) but I can’t. That kind of nausea. No vomiting though. I tried to stay very hydrated. I tried eating Saltines off and on. Yet, about 30 minutes after eating or drinking tea or Sprite, hello tummy monster! Anyway, I emailed my doctor, and I was able to get in yesterday afternoon. Supposedly, I have a virus. I say supposedly because honestly, I think it is more Lyme related than anything else. But I took what I could get which at this point was to get some sort of relief from this symptom. I was prescribed Tamiflu and anti-nausea meds and told to come back next week if it was still going on. Today was better because of the anti-nausea meds, but I’m still having experiencing the nausea.

This is how the Lyme bacteria works. It is a very stealthy and intelligent. According to Lymedisease.org, “Lyme disease is caused by a spirochete—a corkscrew-shaped bacterium called Borrelia burgdorferi. If not treated as soon as infected, then the chances of it reproducing and getting into every system of one’s body is extremely probable. Now granted, not everything can be attributed to Lyme. But for me, most of the time, my symptoms are directly related to Lyme disease.

Again, I hope you all had a much better weekly journey than I did. Take care – B

 

 

 

New Symptom, Or…?

Lyme disease affects each person in a variety of ways. It manifests itself differently and thus, this makes it even harder to diagnose correctly and treat correctly. Lyme disease is frequently called the great imitator. In many cases, Lyme is misdiagnosed as Lupus, MS, CFS, and FMS, along with several other illnesses.

For me, when I was so very sick, some of my more prevalent symptoms included neck pain, daily headaches, severe fatigue, joint pain, sleep disturbances, lower back pain, and nausea. I also had severe brain fog, memory issues, and neuropathy in both feet ranging up to my knees. During the course of treatment, some of these symptoms have subsided. But there sometimes are symptoms that I never had that will just randomly crop up. And I’m like, hey what’s up? Where have you been all of my life? Not.

Joint pain seems to migrate around. While my right hip was constantly in pain for, well, I don’t know, maybe the first year before and then after diagnosis? But then, for awhile in the spring of 2014 my right wrist would hurt off and on. It continued like that for about 3 months and then, bam, it was gone. My ankles sometimes will ache so badly. I bought these crazy ankle wraps at CVS. The inserts can be heated then you wrap the big, chunky, bright blue wraps around each ankle. It helps but there’s no way to wear these at work. Anyway, surely the fashion policy would stop me! I’ve taken to keeping several sizes of the analgesic patches everywhere. These work for the short term so at least they provide a bit of relief. I’ve never had knee issues which is interesting as this seems to be a classic symptom of people with Lyme or so the CDC says.

And then lately, my left elbow and now forearm is hurting. It started in my elbow in early November. It’s an achy and sore kind of pain. I figured it would be gone by now, but it actually these past few days seems to be getting worse. The pain is now also in my forearm. Heat helps. I’m not even left-handed. I’ve been putting off dealing with it; however, it is really is hurting almost constantly now. When I see my doctor next week, hopefully, she can help me out. Or at the very least rule out other possibilities besides Lyme.

It’s always a big surprise with Lyme! Never a dull moment! At least the daily hip pain, and the neck pain is pretty much gone now. I’m just glad that not everything hurts at the same time. When that happens, life just plain out sucks.

I hope everyone is having a good weekend, and I hope all my peeps up North are safe, snug, and warm. Cheers -b

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A Reality Check

It’s December 12th, heading swiftly towards that blinged-out-commercialized-day of Christmas. I’ve put up a few decorations, the tree, some lights outdoors. The weather has been in the highs of 78-80 this week, but it is now pouring down rain and windy as all get out outside. We finally not only saw the snow geese (Canadian geese); we saw a few flocks of them as well. Supposedly, the weather is turning chilly in the next few days as a cold front creeps its way down here. I’ll believe it when I feels it.

Since my new doctor appointment early in November and since starting on the herbal tinctures as my new treatment, dropping the antibiotics, I actually have felt half-way decent. The fatigue has decreased, the migraines are few and far between, and the nausea is way less. It honestly has been a nice breather from the new normal of suckthelymeville. Thanksgiving break was pretty awesome. I was able to do a few things that I haven’t done in so, so long. It was a real treat!

But I knew these next few weeks would be the real challenge at work. The weeks between Thanksgiving and Winter break. While yes, technically, this is only a span of three weeks, believe me, it feels like six. It’s the end of the semester. Things are coming at teachers from every which way. It is always a tough time of year, but as usual, for me it is breaking me down. I know it did last year as well. I’m not trying to be whiny about it at all. It is what it is. I try to keep in mind that even for normal, healthy people, this time of year is extremely stressful no matter what profession and this helps a bit. But I will say this, by yesterday, I was all played out. All day long, my brain was empty and sore. I couldn’t focus on anything at all for more that a nano second. You laugh, but this is the truth. I tried to be productive. Now, I am laughing!

Today, I feel like a bus hit me. The soreness, the aches, the headache, the beloved (not!) nausea. I haven’t slept well in the past few nights and last night was no exception. Tossing and turning. Laying too long in one position produces pain, this wakes me, I turn over, kind of awake, then the process begins over. The unrestful sleep is killer and is just exacerbating all of the other awesome Lyme stuff. My head is hurting. Not a migraine, but just enough to make my stomach nauseous. I hate this combo of symptoms in particular. It feels like having the flu which is just downright miserable in and of itself. Only with Lyme, you don’t know when it might let up or go away. So, Reality Check.

 

Guess what, sucker? You still have Lyme disease!

I LOVE to fantasize. About activities, about going places, about projects at home, about eating yummy food without experiencing indigestion. It keeps my mind busy and delighted, it can sometimes distract me from the ugly gloogy gooks rumbling around in my body. And then. Sometimes, I go a bit overboard going so far as to actual Make Plans to do a said fantasized scenario. This rarely works out well. This holiday season, we have two events we have said “yes” to: an open house event and a dinner event. And even committing to these two things were difficult. While I definitely want to go and have fun with people, especially this time of year, I worry so much about getting to that day / evening, feeling terrible and then canceling. Not only is it disappointing for my people, and for my husband, but it is so freaking disappointing for me. The fantasy comes crumbling down, and I’m left with the slap in the face. That realization that I’m still limited. This is Reality.

How is everyone doing out there? Drop a comment or two so I know I’m not alone. Hoping it’s a pain-free day for all! -B

 

 

 

My Life is Fleeting One

Hello people, it’s been a long while. And as we all say, so much has happened and yet nothing at all has happened. First, maybe, is that indeed, I have made it to Thanksgiving break at work. This is a huge hurdle for me, and I am very grateful to have cleared it, circa 2015, with all limbs intact. There were about 3 weeks there in late September that I honestly thought I would not be able to make it, and I would have to take a medical leave; I was really worried that I was getting worse. Then, things turned around, albeit slowly. I’ve finally come to terms with the fact that living with a chronic disease, things can change on a dime and they do. Although I am not a fan of this at all, accepting this as a reality has been somewhat helpful along my journey into the unknown.

Seeing another doctor has also happened. We made a 3-4 hour trip from home to the new doctor’s office a few weeks ago. The visit was a long one in which I talked too much, my husband reported to me afterwards, and we left with a few bottles of tinctures. Personally, I like this doctor, the approach to treating Lyme through more integrated and functional medicine, the way the doctor listened and validated mine and my husband’s experiences over the past 2 and a half years of treatment. I have stopped the abx and switched over to the herbal drops. The goal is to get to 25 drops 2 times daily. Right now, I’m struggling with 5 drops 2 times a day. I can do 4 and make it alright. But the past couple of days when I tried to get to the level 5, by about 4 p.m. I am herxing big time. I also have detox drops for the herxing, and I have added those as needed, but wow, there is s distinct difference, at least for my body, between the 4 – 5 drops. We are working on it. 🙂

I hope everyone has a wonderful Thanksgiving! This break I’ve been able to do a few things I normally can’t / don’t do while working such as, and don’t laugh: grocery shopping, house cleaning, pie baking, dinner out, laundry – lots! While most of these things are not huge in any way, I have just not had the energy to do them much while working. And I actually did some simple Christmas decorating! It really has been pretty awesome getting to do these things without feeling so fatigued and overwhelmed. While several of these afternoons and evenings I have been in bed with nausea and headaches, I still feel like I’ve had some of the best days I’ve had in a very long time. I know I have pushed myself a little much, and I’ve eaten several slices of pie, pumpkin and apple, so my sugar intake is in the red, but it’s all been worth it! I feel like I have been partying it up, people!

Best wishes to you and to yours, -B

First Aid Kit

P.S. The above band is worth checking out. This song, “Fleeting One” is stuck in my head. Enjoy!

Two Steps Back…

Hey all you people! I haven’t been in touch lately. School started back, and it has been a whirlwind ever since. Mostly, I come home and lay in bed to rest. I rest on the weekends so I can work through the week. Or at least try to. I’ve been off of antibiotics for almost 7 weeks now. At first, there  wasn’t a considerably difference. After a few weeks, the headaches became less and the nausea was a lot less. Otherwise, things were not better or worse. But then, the first week in September, I caught a cold. My husband was in bed for three days over Labor Day weekend; I stayed as far away from him as possible! But so many people were sick at school, it was impossible to stay away from the germs.

So it got me. I held on, and I really thought I was winning the battle. But since then, things have gone south. My energy level is nil. I have a recurring sore throat on the right side and I have issues going on with my sinus. I’ll spare you the gory details but suffice to say, my sinuses are full. I can breathe through my nose most of the time, but there is stuff way up in there that comes out in the morning and evening through coughing. The body aches and the back pain are back. No appetite really. I’m guessing that the EBV is active again and maybe the Mycoplasma pneumonia load is high again. Depressing? A, just a little.

Walking forward.
Walking forward.

Heading to my LLMD tomorrow. While I look forward to going, I know I will walk away disappointed. Labwork takes a week, and then it is a VM recording from the doctor about the lab numbers and what is next for treatment. Nothing seems to change much. No matter what, I am guessing my doctor will end up putting me back on some antibiotics, and we move sideways? It hasn’t been a move forward in ahile by my account. While the summer was nice because I could rest as needed, I feel as though I haven’t made much progress in terms of my health since I had the Picc line last summer, 2014.

So, now what? I drag myself through every day, hoping the next day will be better. I’m finding less and less to enjoy as I am too fatigued. I have an appointment with a different doctor in November; I’m hoping to try and find some other ways to treat this along with antibiotics. I do have tons of supplements and I am trying to take some antivirals, but it got to where I was taking like 30-40 pills a day and that got old real quick. My diet needs to change. I know this. And I need to make it happen. I just get so tired!

We’ll see how tomorrow goes. At least I can tell my doctor what is going on and that in itself can be a relief. I promise to update soon.

Peace – B