River Staycation

We decided to do an overnight trip to a major river about 3 hours from home this past week. My husband loves a particular spot, and the river is spring fed so it is nice and cold. Temperatures here are now are hitting 95-100 degrees with a heat index of 105+. It’s really hard to find fun things to do that do not require you to be outside between say 9 a.m. until 9 p.m.! Fer reals. I just can’t do the heat at all.

We also decided to take one of our several dogs, Newton, as he has made a trip to Colorado (17 hours in a car) and did very well. He is also very well tempered and loves to socialize. We weren’t sure how he would do in the hotel, but we figured worst case, we could make the trip home that night if needed.

Needless to say – he had a blast! He met all kinds of new people and other dogs. He swam a bunch. He had many adventures! Staying in the hotel went well. He barked just a few times but nothing major. He passed out and slept all through the night. We will definitely be doing this again!

As for me, I did pretty well, too! I’m pretty rested up from not working, and the river has great places that are shaded so I didn’t overheat. My fatigue has lessened over the past month or so and I was able to keep up. Overall, we had a wonderful time. It was great to be outside and to enjoy being active!

Hoping your summer days are joyful – b

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Muddled Brain

Hi my people. I know, it’s been a minute. I’d like to say “Oh, hey! I’ve been feeling SO much better that I am off having mad adventures!” but that isn’t the reason for my absence. Unfortunately. However, it isn’t because I’ve been so bad either. The honest truth is that, well, I’ve been doing my best to finish up the school year and cross the finish line for 2017-2018. And here I am!

Lately, the muddled brain is back. I guess it is brain fog, but it feels different than when I first was sick. Back then, my brain didn’t and wouldn’t work at all. It was a struggle to read even and that was despairing. I couldn’t form thoughts, my short term memory was null, and trying to say basic words? No way. It was frustrating and scary all at the same time.

Slowly, and I mean soooooo slowly, my mental skills have been improving. Reading has become easier, although I still struggle with longer texts, and I have started to join conversations again without fear of completely forgetting my train of thought.

But,  recently, maybe in the past 6-8 weeks, things have started to sneak in and/or get worse when it comes to brain function. It’s worrisome. Yet, I wouldn’t describe it as “fog.” At this point, it’s more a jumbling of thoughts in my brain that I can’t sort out. I concentrate and try to spread the thoughts out or I try to separate them into like categories, but I just cannot.

It’s more lik I have 50 thoughts going on in my head and when I try to follow one thought logically and progressively, I just cannot. So the thoughts spin and spin and then maybe, if I am lucky, they just hit a wall and stop for a bit. However, none of this is helpful when trying to actually do something that takes any concentration, say like, Problem-Solving. OMG. And it is frustrating becuase behind all of the basic shallow ideas and thoughts I am able to have and to follow to get me through the day to day, I know there are more in-depth things going on in this brain of mine that are just inaccessible. 

But otherwise today, I just want to say HI and get back to it with you. I hope your all is going well. I hope you have had some, I mean many, joyful moments. – belle

 

Update from ReadBetweentheLyme :)

Howdy Friends! It’s been awhile, I know. This year has been off to a kinda crazy start. In order not to bore you, I’ve put things into bullet points:

  • My husband had the flu over Christmas break. It lasted about 10-12 days. I tried to make sure he was as comfortable as possible. I also tried to be very patient. He recovered in time for New Year’s. 

  • School started back up, and it’s always a challenge and stressful after a longer break. I mean no one wants vacation time to end!

  • We offered to house our 22 year old nephew who was in-between homelessness and rehab. He stayed about 4 weeks. It was very stressful and not such a good experience. 😦  But, he did get to rehab and is doing 30 days at least.

  • Over the MLK weekend, we had freezing temperatures. Then, we had sleet and ice. We had 2 days out of school due to weather. I won’t lie, it was pretty fun to have “snow days!”

  • I had a severe back pain attack the same week. I ended up taking 2 days off of work because I could barely move. It was awful. My doctor says it is degenerative disc dsease. I ended up having another flare just a  few weeks after this one. I’ve considered going to a back specialist, but I am so over doctors right now!

  • Towards the end of January, my husband caught some upper respiratory infection. This lasted about 7 days. Since we are both teachers, it isn’t difficult to catch the latest crud going around at school. And believe me, there’s been a lot of germies circulating this year!

  • February was a month of Seattle rain and dreariness but in Houston. There was maybe one day that we had some sun? It was seriously depressing.  We celebrated my mom’s birthday, but that was about the only fun thing happening!

  • Spring break just started and my nephew spent 2 days in the hospital with a virus. He is on the mend now. 

  • About 10 days ago, I had a rash start up (again!) on my left eye. It lasted all week and then seemed to go away. But the Saturday, the rash started on the top pf both hands and on my neck. From there, it has popped up on legs and arms. It is so much worse at night. I’ve been downing Benedryl. The last time this happened, my LLMD was clueless (she made me treat for bed bugs which it is so NOT) and the dermatologist said it wasn’t “skin lupus” and sent me on my way. I’m just aiting it out because again – I am so over doctors right now!

  • The weather has been beautiful! Temps are about 70 and it is sunny outside. 

  • I had a list of a few things to get done during Spring Break and I have about 140 research papers to grade, but right now, I am just going to take it easy. 🙂

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So that is a really quick update! I see one of my LLMDs this Friday, but I don’t expect much at all, if I even see her personally. I’m not trying to be bitter but I am just a little. I’m very grateful that I have my holistic LLMD that I see every 4 months, otherwise, I just don’t think I would have made the progress I have this past year. 

I hope you and yours are enjoying your days. Best to you.

Peace – Belle

Happy New Year 2018 with Many Thanks

Hello and Happy New Year! I know I’ve been a bit silent lately, but it isn’t for any particular reason. This winter break is going way too fast. My husband has been battling the flu. It hit him the week of finals and is still hanging on. The doctor said this flu hangs on for sure. I think he’s finally on the mend. My fingers are still crossed that I will indeed NOT get this flu.

We had a great Christmas, very sinple. I hope you and yours had a good day as well! I haven’t been up to much really. Keeping the house clean, puppies fed, husband nursed. All things I am so grateful for as a matter of fact. Being off of work has allowed me to rest and do things I normally just can’t manage to do while working full-time mostly due to fatigue and other symptoms. Goingout  to a movie and out to eat are definite treats!

Overall, my health has been steadily alright this semester. I gained some ground over the summer, and I feel like I have managed to keep a grasp on most of that ground. I see my holistic doctor in a few days, and I am curious as to where we go from here. I’m still dealing with afternoon fatigue. My thyroid is not working properly – AGAIN – and a few weeks ago, I started having slight numbness on the lower right side of my face. Nothing that itches or hurts. It just feels like there is pantyhose covering that small area. It is a strange feeling.

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Newton and I taking a New Year’s day walk. COLD!

Yes, I told my doctor here (my original LLMD) this information when I saw here last week – oh wait. I didn’t see her; I saw her PA. Now the PA is a very sweet person, but now it has been 6 months since I have seen my primary LLMD. Seriously.

Anyway, I told her about the numbness and she said, “Wow. Yes, I am sure that is annoying.” That was all. I’m still waiting for my labwork to come back and for the doctor to advise me on what is next. Honestly, I don’t expect much. I shouldn’t be irritated. This is one of the many reasons I went and found a secondary holistic LLMD 2 years ago. However, my 2nd doctor is a 3+ hour trip away from home and does not take insurance and so I have 2 doctors – one near, and one far. I count myself extremely lucky for sure as I know many Lyme disease patients who have no access to an LLMD at all.

Thank you for all of your support throughout my humble journey with Chronic Lyme disease thus far. This blog and this space with you, my friends, has been such a wonderful gift. You have listened to me, encouraged me, understood me, and loved me. I couldn’t ask for anything more. From the bottom of my heart, I embrace you and wish you each the best of everything in this beautiful year to come. Here’s to 2018!

With Love and Joy, Belle

 

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LuAnn is all ready for the freezing temperatures we are experiencing here in Houston!

The Damn Rash is Back

First, before I start on my rant, I hope you all had a wonderful Thanksgiving! We had a really good day. The weather was AMAZING. No humidity (say what?!?) and the high was maybe 60? Delish. It was just my mom and me and our 10-12 dogs between us. We cooked, talked, cooked, and talked. It was great to reconnect. My husband and step-daughter arrived home from out of state about 4 p.m. and then we got to visit with them and hear about their trip. I hope you and yours had as much joy as we did!

Now, the RASH. Since contracting Lyme (when this happened I have no idea but….), I have had strange rashes. On my legs. On my arms. On my hands. On my face. I had a bout with hives this past summer. I never really figured out why. It’s been since July 2016 that I’ve had a legit rash. And it was very unpleasant. It was under my left eye across my cheek. It was down the left side of my face and under my chin,

It itched so horribly!! My doctor sent me to a dermatologist (since I had just had this rash in April 2016, same place). The dermatologist tested me for skin Lupus and sent me on my way. The test was negative. She gave me some cream which helped the itching but whatever. It lasted about 10 days. 

My out of town LLMD looked at pictures a few months later and stated it was systemic and not caused by anything external, aka Lyme disease. Or maybe a virus that caught me because my immune system is just plain no bueno.

Anyhoo. It’s back. Same rash but it’s under my right eye and on my right eyelid. It itches something fierce, and I am trying my hardest not to itch it! It is miserable! It popped up Friday night and has just spread a bit. It looks like my eye is swollen. Nice. I’ve been babying it and keeping it contained by not touching it (ok, barely!). And, I’m back at work tomorrow! Yippee!! 

 Look, the last few times it has been much worse, but still. My plan is to go to work as it isn’t contagious (we figured this out the past 2 times as well) and hope that it clears up asap. If my eye gets worse or the area gets more swollen, I may have to take a day off, but I am really trying not to do that if at all possible. 

I’ll be honest, the rashes on my face just make me so anxious. Not because of what it looks like but it’s just a constant reminder that Lyme is still lurking. Lyme is still beneath the surface just waiting for any chink in the defense. It’s a reminder that even though I’ve made progress, I still have miles to go. UGH.

Surface

 

Damn rash. 

Wish me luck with this. Have a good week, friends. Be happy. – b

You’re Kinda Cool

Howdy out there! In  our neck of the woods, we’re enjoying the 60 degree weather and the World Series brouhaha. We’re also hoping the Astros win!! Fingers crossed.

So, I’m off of all antibiotics now for Chronic Lyme. It’s been about a weekish. In the past 10 days, I have been feeling the fatigue creeping back in. Not drastic by any means, but I can feel its weight. By about 1 p.m. in the afternoons now, I’m pretty much  done and I’m ready to go home and rest. A few nights this past week, I have gone to sleep by 7 p.m. While I’m not noticing a lot of other symptoms, I’m still worried and pensive about not being on medication. I did blood work last Tuesday, so hopefully the results will be back this week and I’ll hear from my doctor. 

I know I shouldn’t worry and that “it is what it is” but easier said than done. It’s hard to find a balance between ignoring and obsession! I am trying to be hyper-vigilant without being a freak. Hmm.

Work is going well. My students are great, and I think we all adjusted after Hurricane Harvey postponed our start for a few weeks. It still feels weird though that Thanksgiving is just 3 weeks away. How did that happen?

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Anyway, being a teacher and one that is chronically ill, 5 performances daily can be extremely difficult (teaching is a demanding job even when one is healthy!). I work hard at projecting an energetic and positive image while in the classroom regardless of how I may be feeling. My audience is 15-17 year olds, and they can sometimes be a very tough crowd, even on a good day! 

But here’s a note I received in my mailbox from one of my students on Friday:

“You’re kinda cool, I guess.”

I literally laughed out loud. Really, this is like receiving an Oscar in my line of work. I’ll take the wins when and where I can get them.

Stay kinda cool, my peeps. Have a great week! – b

Celebrating 3 Years Here at Read Between the Lyme!

Howdy! I just realized that this month completes 3 years of blogging here at RBTL! How awesome is that? I appreciate everyone who subscribes, reads, shares, comments and all the other cool things you people do! THANK YOU!

While I realize that I haven’t been posting as much, especially this summer, I am going to keep blogging. It has given me an outlet for writing and for connecting with others that I hadn’t imagined. So upward and onward, right?

Looking back at the past 3 years of posts, my focus has been on my personal journey involving the attempt to deal with a chronic illness. I promise to try to be better about working in some other things that maybe are not Lyme related. I can imagine just reading about How I Am Sick gets pretty boring.

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So on that note, here’s a little tidbit about me you may not know. My profession is education. I will begin my 17th year (how is this possible?!?) of teaching this August. Too soon might I add. While in college, I really didn’t know what I wanted to do. I flip flopped between Journalism and Psychology as majors. And I went on to get a Master’s in Composition and Rhetoric.

After working a few years at Starbucks as a store manager, I went through and Alternative Certification Program to acquire my Texas Teaching Certification. I started my career teaching 7th grade Language Arts. At this point, I am working with dual credit students who are earning both high school and college credit simultaneously in high school. Oh, and I teach English (or Freshman Composition as dual credit). It really is a great position!

Originally, I was interested in teaching community college, but those full-time-with-benefits- positions are all but over. I did adjunct for awhile when I taught middle school, but then I opened a new school in 2008 as the English Department Chair, and I just couldn’t manage it all.

I am no longer the department chair as Lyme has interrupted me in so many ways. However, it was a good ride, and I learned so much. And since I work at literally the Best Campus Ever with the Best People Ever, I have been able to adapt to a new norm as it applies to “work.” At this point, I’ve been at the same campus for 9 years. We are celebrating our first decade this year.

Teaching definitely ain’t easy. But I can’t imagine doing anything else. I’m grateful that I have been able to continue working these past 4 years after entering treatment (finally!).

Well, so there you have it! A little reveal from me that maybe you figured out before (because I do have the smartest followers!) or maybe you didn’t know at all.

Again, THANK YOU for supporting me as a blogger these past few years. I am very grateful.

Peace –  Belle

 

Gettin My Slothy On

There really is a term “gettin slothy!” Who knew I would be so cutting edge with the urban slang! Go me!

Anyhoo, the past few days, I’ve been in this mode. I feel a bit guilty, but I truly feel like doing nothing. I’ve watched a lot of Netflix but that is all I can be bothered to do. No worries though; I have been feeding and watering the animal menagerie. They all seem quite content that we have been laying around in the AC watching copious amounts of television.

I can’t seem to get motivated! UGH. I would blame it on the Lyme but I haven’t been feeling terrible. Yes, I do have to rest off and on especially with the new meds I’m taking but not for 5 hours straight! And overall, I’m feeling better this week then I was last week, so what gives? In my defense, my husband has been really busy all weekend with some side projects and so I’ve been mostly alone. I don’t mind it, I just obvioulsy can’t take any initiative by myself!

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Not now, please!

I tried to be better today. Although I told myself I would complete an online class for work and well, that didn’t happen. But I did do some laundry and a few other household chores today so can we call it a “productive” or rather “not wasted” day, officially?

I mean I guess a positive of this situation is I am realizing I’m gettin slothy. Last July 4th, I wasn’t feeling very well at all. In fact, my husband went to a little get together, and I just couldn’t due to symptoms and fatigue. So that is good news. I’m not sure if we are up to anything tomorrow honestly. Maybe a movie. Maybe a meal out. Not sure. But either way, this summer, I will be able to do some stuff if we decide to which is a really nice change, no doubt.

On that note, I hope that you and yours enjoy Independence Day tomorrow (for those fellow Amercians) and I hope absolutely everyone has a great week! Take care, friends.

Peace! – Belle

 

Summer 2017

Howdy ya’ll! I hope your summer is sailing along smoothly. I always feel extra lucky because as a teacher, I have summers off (kinda). The first 6 years I taught, I worked in the summer. I spent 3-4 summers as a shift manager at Starbucks (I had been a manager for them before teaching) and then I spent about 3 summers teaching as an adjunct.

After that, sometimes, I would teach a summer high school course. This wouldn’t be all summer, just 3 weeks. And some summers, I attended conferences and or week-long workshops. However, these past 4 years, I haven’t done anything of the sort. I struggle to keep my summers work-free so I can rest and try to get my health on track.

I now marvel at the things I used to do before getting severely ill. I also used to adjunct during the school year, usually teaching one evening college class each semester. No can do now. And so, because of illness, I have definitely modified my activities.

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But back to this summer. So some things I’ve been able to do that I normally cannot manage while working:

1. Hangout with friends. Nothing fancy but stuff like dinner and lunches. Just visiting and spending time together.

2. Go grocery shopping! I’m so not lying. This chore can be so overwhelming and so full of anxiety for me I just cannot manage it. So I’ve actually sort of enjoyed (except the bill!) going grocery shopping for us this past month.

3. Spend time with family. With energy so limited while I am working full-time, it is rare to just get together with family and visit. It’s a total gift to get to do this unplanned.

4. Be upright and not in pain after 4 p.m. daily. Sure, I still have to rest. And yes, I do still have pain periodically any time of day, but it’s nice to know that some days, I can be up and active in the afternoon, on a weekday!!!

So as you can see, there’s nothing too crazy going on here this usmmer. But I’m glad I have the time to do a few cool things I can’t do normally.

I’m off to cook some dinner for my husband. I forgot to add that to my list! 🙂

Happy Summer, friends. Talk to you sooner than later. -b

P.S. I really feel like Bilbo below!!

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