Day: December 23, 2016

A Week Long Lyme Headache

I woke up this morning, early, and I was really excited because I didn’t have a headache! Yippee, thought I. And then I realized that I’ve had a headache for over a week now. Maybe 10 days? It subsides off and on, but I think it is the same damn headache. Maybe not, but that really doesn’t matter all that much. The pain matters more.

It may be the insane weather we are having. Last week at this time, it was 80 degrees. Then by Sunday, it was 27 degrees out. And today? A rainy and moist 75. Seriously. So, yeah, there’s that. It may be that the semester just ended and even after 16 years of teaching, it’s still pretty stressful. More stressful when chronically ill. So, there’s that too.

There have been a few days these past few weeks where I just keep taking medicine and hoping one of the many selections will just give me some relief, and periodically something has. Usually it is maybe an hour or so at a time. Then, the monster returns. It isn’t a migraine. It’s just a constant pain inside my skull.

Before Lyme disease, I rarely had headaches. The only headaches I experienced were either alcohol induced or hormonal. Indeed, I was a lucky duck. My mom has had issues with headaches her whole entire life including migraines. And my husband also has migraines periodically that lay him out for most of the day/night.

Then, in the fall of 2012, I began to have daily headaches. Not crippling, mind you, but just enough pain to not be able to ignore. Every day at work, by noon, I could feel it coming on (or maybe it never really went away). Sometimes, nausea would accompany the headache. The Daily Headache continued for months on end. Of course, there were a multitude of other symptoms going on but the headaches were something quite new and stood out more than say the fatigue or the periodic joint pain.

When I saw the Worst Infectious Disease Doctor Evah (although statistically, ID doctors are NOT LYME LITERATE) in January 2013 with a solid 25 symptoms including the onset of the new Daily Headache, he told me to drink more water (since I was hospitalized with a horrible kidney infection in 2006 I drink almost a gallon of water daily). The ID doctor dismissed every single symptom I explained to him but the bitterness of that particular doctor visit is for another time. Needless to say, almost all of my symptoms were classic LYME DISEASE symptoms and luckliy, I was diagnosed (and CDC positive) less than 6 weeks after this visit with the dismissive ID doctor. Anyhoo!

As I moved into oral antibiotic treatment, the headaches continued except at some point, I can’t pinpoint when, I began to have migraines. WTH! Migraines really suck! I now can empathize way more with my mom and my husband and others! Hours and hours of pain, nausea, ugh. For a while, and I can’t be more specific because of my short-term memory issues (LYME symptom as well), I had daily headaches and then migraines in between. Good times. I am so sorry if you suffer from headaches and/or migraines, my peoples!

When my LLMD took me off of antibiotics full-time last November 2015, I still had the headaches. And the migraines. But, slowly and surely, these daily headaches and the migraines began to let up a bit. So, for the past few months, probably since say June (again, short-term memory loss!), there’s been a reprieve from the daily headache. Since June, I’ve had maybe 3 full-blown migraines. This has been progress! I think that this progress has been the result of many things coming together at once, such as Lyme treatment (after so many years going untreated) and dietary changes.

migraine

But, since Thanksgiving, my diet has been seriously not so good. I had cut out all sugar, carbs, cut down on wheat and corn products. Oh, Thanksgiving. I mean, I haven’t gone totally CRAZY with eating sugar, etc. but I have been drinking more soda and well, I sure haven’t been grain-free. I plan on getting right back on my diet after Christmas. I can see now that it has helped me to control some symptoms and while it was a bit of an adjustment to new eating habits, it certainly is worth it.

Like I said, this headache started about a weekish ago. On my last day at work, before Winter Break, I sat in my classroom, in the dark, just trying to work through the pain (no worries, I didn’t have students LOL).  Saturday was much of the same. At least this week the headache hasn’t been a full-blown migraine but still. I’ll tell you though, I most definitely appreciate the time I have without headaches now. Pre-Lyme, I never noticed how wonderful it is NOT to have a headache. Chronic Lyme disease continues to teach me lessons. Hey, just trying to stay positive! 🙂

And, here comes my little friend. Back again today. Time to rest a bit. 

Toodles friends – B

 

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