What’s Going On?!?

WOW! So my out of town doctor (OTD) at my last appointment in May looked over my labs (the ones where my ITDoc said my thyroid was “fine”) and said the numbers weren’t where we should have them. OTD then added more thyroid meds and told me to start tirtrating up from 5 mcg and to continue to add another 5 mcg weekly until I hit 20 mcg. OTD told me to stop at the dosage anytime I began to feel better and more energetic. Since the middle of May, I have added the thyroid meds and maxed at 20 mcg around May 28th. Again, this is medication in addition to the Synthroid I have been taking for years on a daily basis for Hypothyroidism.

With the first 5,10, 15 additional mcg I really didn’t notice much. Maybe a little more pep but nothing too noticable. Then, I hit the 20 mcg. Again, not much felt different the first week of this dose. But after about 2 weeks, BOY HOWDY! This past week has been seriously amazing.

Some things I’ve been able to do this past week that I haven’t done for months on end……and that I definitely haven’t done all in one week for YEARS are: Go out for dinner with friends, go to a movie (at night!), go grocery shopping (I am not kdding), go to lunch with a friend, mow the entire yard (like an acre), clean the house, do laundry, cook dinner, go do errands and actually enjoy said errands! Stay upright most of the day! I also have added small increments of excercise on my old elliptical machine.

No Way!
Source: Netflix GIF

I’ve had the best time! I know that most of the above a normal person can do without much thinking about it, but for me, it has been something else. Have I still had some joint pain? Yes. Have I still hit some energy walls? Yes. Am I not working right now? Yes. But still!!!

Now granted, I probably have absolutely no idea what “normal” is anymore. After 4 years of treatment and about 7 years of being ill what I can remember is most likely skewed. But I honestly haven’t felt this good and full of this much energy in….well, I have no idea how long. While I have had some hours and maybe a few days sporadically over the past year where I felt well enough or I had enough energy enough to do a few things, I have never had an extended period of time – a whole week! – where I felt like this.

I’m savoring every single minute, my people. Every. single.minute. My husband says we’ll take what we can get, and I say Amen to that. I know I’m not “cured.” I also know that my being off from work for the summer helps. I also realize that I’m starting a new treatment protocol of combination antibiotics and high doses of those antibiotics in just a few days. There will be fallout from this treatment. I will have to detox, to deal with new symptoms, to handle herxes. I know. I know. The thought  of lsoing this momentum makes me want to not go ahead with this protocol. But, I need to try it. I’ve never been treated with combination therapy and if I’m going to do it, the summer is the best time for sure.

But until I start the new meds, I’m going to kick it up as much as possible. I’m going to try to squeeze in everything I physically can while I feel good. So I’m off to do some projects. I hope your weekend is wonderful. And a Happy Father’s Day to all you dads out there. Take care of yourselves.

Peace and joy- Belle

 

 

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8 thoughts on “What’s Going On?!?

  1. This.shaking June 17, 2017 / 5:07 pm

    Dear Belle: Thank you for writing about this. I have been on synthroid for nearly 10 years. My dose has been raised several times so I am now on 100 mcg. Still no energy. I am very interested in what other medication you are now taking and would really appreciate it if you could let me know – either here or through per.ardua@mail.com. I wish you all the best with all the other dragons you are facing! Thank you. TS

    Liked by 1 person

    • Read Between the Lyme June 17, 2017 / 8:48 pm

      Hi TS! yes, I’ve also been on synthroid about 8 years now. I’m also at 100 mcg. My dose hasn’t changed for a few years now. My Lyme doc out of town said numbers weren’t where they needed to be so she added liothyroine 5mcg in October. It didn’t do much. But just last month she had me start adding 5mcg per week up to 20mcg. I’ve now been on the 20mcg for 2 weeks. I can totally feel a difference. I’ll go have labs done in a few more weeks so doc can check numbers again. Do you also have Lyme? I was diagnosed with hypothyroidism about 4 years before I was diagnosed with Lyme disease. Come to find out Lyme likes to attack the thyroid. I hope this information is helpful. I’m amazed by the increased amount of energy I am experiencing. Best wishes to you and please feel free to contact me anytime!

      Like

  2. Sherry Felix June 18, 2017 / 6:29 am

    Thanks for this information. I am going to find a new endocrinologist and ask about Liothyroine. I am not up to much these days and that may be part of the cause. I take 127 mcg of Levothyroxine.

    Liked by 1 person

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